Posted by: sistermom1 | August 16, 2015

Illuminating the world from a wheelchair?

This week I have been pushing myself not to be overcome by my physical challenges. I am still in a wheelchair, and this past week has been extremely difficult. It is very hot here (it is August in DC after all!) and MS and heat do not play well together. My legs are in a lot of pain, I continue on this strict diet plan, and for the past month have been coordinating weekly teleconferences planning a family reunion (no stress THERE!:-) I did eat sugar yesterday for the first time in 3 months — a slice of pound cake and a scoop of banana pudding, and that has had an impact, but everything went well and it was a great success!

Experiencing the event from my chair – especially seeing folks that knew me when, but who have not seen me in the past few years – made me pause. In the past, I was the one who coordinated many things, the one who walked around helping, the one who was called on to handle confusion, come early, stay late — you know, THAT relative. Don’t get me wrong, there are many good cooks and organizers in my family. This time I had to rely on them – and they completely handled it. We had a great time yesterday – lots of smiling faces, great food, old pictures and wonderful memories. Some drama too, but it was a real success thanks to so many people.

Still it made me wonder about how to value the contribution that I can make to the success of any team I am on. I have to change the way I view things like this. I have realized that I can help make things happen from a chair, I just need to open up my thinking, and be flexible about how I do it. So many of the things I have been reading point me towards a new way to accept my current reality — not only accept, but push through it and enjoy my life — no matter where I’m sitting.

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