Posted by: sistermom1 | November 23, 2011

What a Week!

This past week has been an incredible one.  Much has reminded me how fortunate I am in the midst of this major health struggle.  A summary:

Monday and Tuesday: 2 days of video shooting — A woman I met while attending a program sponsored by MS Can Do ( asked me to participate in a video that was being filmed to help others diagnosed with MS.  The video team (6 people!) came and we spent time talking about my MS journey and much of what it has taught me.  It was truly a gift to be able to share my experience, and to have the time to reflect upon what it has been like for me and my family, especially at this time of year.  The team was lovely — very professional and fun — and I learned a lot about myself, my family, and about the whole process of documentary filmmaking.  Stay tuned for the video!

Wednesday — I used Metro Access for the first time!  I wrote about getting approval to use this system earlier.  I did use it for the first time to get to my monthly infusion of my medicine.  The drivers were on time and polite and very service oriented.  The experience was positive, although I did learn how easily influenced I can be by other people.  When waiting for my return ride, one of the office technicians passed me in the hall and shared another patient’s experience with the service.  He spoke about the person having to wait 2 hours for their ride, and calling the service several times.  It made me so nervous, that I called to ask the status of my ride.  Turned out that my ride was not late at all — in fact the driver arrived right on time!  A lesson in not being swayed by my environment and dealing only with what is happening to me at the moment rather than what happened to someone else.

Thursday – A day of rest.  I was able to spend time reading, praying, sleeping, exercising and connecting with friends and out-of-town family members.  I really appreciated having this kind of day.  In my past I would have considered this an “unproductive” day, but my attitude about how I spend my time has changed dramatically in the past few years.  I loved this day, and I look forward to others.

Friday – Metro Access again — I went out to lunch with friends for the first time in months.  It was a lovely time, and the food was great.  It was great being out with “the girls”, and having time to talk, laugh and catch up was truly very special.  My physical limitations have prevented me from hanging out with them for a while, and although we do talk regularly, I miss our monthly outings.  The restaurant was newly-opened, and the driver knew exactly where to let me out so that I could roll right in the front door.  When lunch was over and I was picked up, the driver was friendly, polite and professional.  A great time, and we are planning the next outing.

Saturday:  A wonderful day — we learned that our son was one of 20 students recommended to participate in a national mentorship program!  This, without me making any suggestions or spending any energy networking/navigating/negotiating on his behalf.  Before MS, my professional world required much effort.  Having the right relationships and networks was very important for me to be successful on any level.  The fact that this happened for my son without my having to make any calls or do anything is a real testament to him and how he moves through his world.  We continue to be very proud of him.

In general, it has been a wonderful week with many great things happening.  This is the first week I have felt like this in many months.  I write this entry — not to brag, but as a comparison to many of my previous blog entries.  I had no idea that my life could ever get close to this kind of rhythm.  It has been such a long time since I have had as busy a week as this.  Now that the holiday season has started, I am looking forward to having a life focused not so much on myself and my health, but on others and the wonderful spirit and busyness of this time of year.    I am starting out the season with much thanks in my heart…

Happy Thanksgiving everyone!



  1. What a wonderful week. I’m so happy for you. Our life is full of rhythms and I’m glad that you are having a happy and peaceful one. Happy Thanksgiving. Big hug!!!

  2. You’re not bragging…what a great week! 🙂

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