Posted by: sistermom1 | May 15, 2011

My Learning Continues

Much has happened in the past few weeks.  A general recap (not mentioning everything):

– I stopped seeing my therapist.  We’ve been together for 18 months and I have been feeling like we have gone just about as far as we could go.  I have begun looking for a different kind of help.

– My spasticity has dramatically worsened — the acupuncture that I have been doing for the past 2 months stopped because of my practitioner has been travelling for the past two weeks.  It may actually have been working.  I started that again last week. 

– Teacher Appreciation Week — As the room parent for my daughter’s class, I coordinated the gift for our teacher.  Thank goodness she was away for a week so we had extra time to pull it together.  Unfortunately, not everyone responded to my multiple emails, but enough people did that we had a great gift to give a very deserving teacher.

– Our son missed his AP exam in Government – After I completely freaked out and gathered my wits bout me, and he got the details straight, he is going to the make-up on Wednesday.  (Can you say “Drama”?)

– I spoke with a relative who has distanced herself from my family of origin since 2006.  This was amazing — I am still reeling from this new development, and will keep you posted.

– I had an initial appointment with a new PCP.  She is fabulous, and has several other patients with auto-immune diseases, so she has some exposure to the challenges that I experience every day.  After our second appointment, she is watching my blood-pressure closely.  She also felt a questionable lump in my breast, sending me directly for a mammogram (they actually made the appointment for me!) and referring me to a surgeon….Thankfully, it turned out to be a cyst that just needed draining, but the surgeon was a lovely man with the greatest bedside manner ever who also knew a great deal about MS, so it turned out to be a very positive experience.

– I reconnected with an old friend “P” who was in graduate school with me when I met my husband.  (Bless facebook!) It was wonderful to chat with her again — it has been way too long.  After we chatted, she sent me a book – Accomplishing More by Doing Less by Marc Lesser.  This is a wonderful book which has pushed my thinking about my life in many ways.  I will refer to it in future entries, but just want to share this point Lesser offers about something he learned from his multiple health challenges:

“I offer what has surprised me in my pain: that life is not fair, but unending in its capacity to change us; that compassion is fair and feeling is just; and that we are not responsible for all that befalls us, only for how we receive it and for how we hold each other up along the way.”

This is one of many sentences in this insightful and revealing book that have resonated with me and my journey on this detour.  I highly recommend this book, and will mention it in later entries as we move together along this journey.  Please check it out at!

It has been a busy couple of weeks — I am blessed by your interest.  My learning continues….



  1. Dear SisterMom1,

    What an EMPOWERED PATIENT you have become. Sounds like you have had a seriously busy few weeks and you are making responsible and courageous decisions for yourself! Finding the right doctor is so critical to your wellness-take your time and do it again, if you have to, until you feel you have the right team.

    So glad to hear your LW crew dropped by and brightened up your day- I know that lunch was completely off the hook! 🙂

    Cheering you on with your “new dialogue” with your distant family member. Let the words; ” I Love You and Need You In My Life” be your response to any fragile moments in your communications.



  2. Dear Sistermom1,

    I’ve just heard about your illness from “S” who sent me a link to your blog. I attended the memorial for “J” and saw many old friends. You were not among them; now I understand. You have always been a woman of true grace and giving spirit. All of our bodies will fail us sooner or later, it’s our spirit and the magnanimity of our life, our good deeds that will remain.

    I cannot know the physical challenges that you face but I know the greatness of your life. I hope to see you when I am again in DC and with your permission, I’d like to walk this path with you.

    Always Smiling from Chicago

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