Posted by: sistermom1 | March 10, 2011

Sick and Tired

We had a lot of challenges during the month of February, including three days without electricity because of heavy snow.  We were able to stay at my mother’s house for those three days — something I wrote about before, and something our entire family really enjoyed.

Being out of our home was a challenge for everyone – including my mother, but we all had a wonderful time.  It took me a few days to get back on our normal schedule after we returned home, and I chalked my tiredness up to being out of synch.  It was not until the end of the month that I was overcome with fatigue like I have not felt in over 2 years.  That tiredness — often called “MS fatigue” is as if someone dropped a hot, wet blanket over my head.  The energy was completely drained out of me, and I could not see why.

And then a thought occurred to me.  I immediately called the infusion center to see when my next infusion of Tysabri was scheduled.  It was not until the nurse said “You must really be tired – you missed your appointment this month.” that I realized that I had not had my February infusion.  Amazing how I forgot the tiredness that sets in.  It is difficult to describe — it is the most tired that I have EVER felt at ANY time in my life.  Including any day after an all-nighter, the crazy parties of my 20’s, or the late night movie-watching of my 30’s.  It had been such a long time since I felt tired at all, I had completely forgotten about what it felt like to be tired.

Yes, I am sick — but not sick and tired.  The meds are working better than I had ever expected.  I can tell because I don’t feel as tired as I was beginning to feel.  I now have the mental and physical energy to do more than I had become used to doing.  (Amazing how quickly I made that adjustment!)  Having more energy enables me to make more of a contribution in our home — more time to do the things I want to do every day with my husband and children — and even with my fabulous sisterfriends.  And I definitely appreciate that!

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