Posted by: sistermom1 | October 28, 2010

A wonderful weekend!

My daughter and I had an incredible weekend.  As you read in a previous blog entry, I planned to have a girls’ weekend at a local hotel with my 11 year-old daughter.  So much of our life together is determined by my physical needs/abilities, that my children end up getting lost in the daily family shuffle, so I thought this would be a good idea for both of us.  That ended up being a great idea.

The hotel that I originally chose ended up not being able to accommodate my (week-old!) request for an accessible room, so I had to make a last-minute change.  Because of my physical challenges, I wanted a hotel that was attached to a shopping mall, which greatly limited my options to three properties.  Since the one I chose initially could not accommodate us, we were left with two options, both Ritz Carlton properties. 

My experience has shown me that to get the level of attention, services, or support that I need in a hotel, I must choose a higher-end property.  When we went on a family cruise this summer, we ended up selecting a higher-end line that could handle my need for extra space, bigger cabins, enough handicapped public bathrooms, and wide enough hallways to handle my scooter.  It’s expensive to be ill….

Anyway, the Ritz Carlton was fabulous!  They treated us very special, had great food, and a lovely, accessible room that we both loved. We ate, shopped, swam, talked, and relaxed together.   There were several times during our stay that my daugter just stopped, looked at me and said,  “I love you Mom”, and other times, “Can we do this again?”  I am so happy that the idea of doing this came to me in one of those “Morning Breezes” that I have written about before.

Sometimes, my new reality of being less physically independent is very difficult for me to accept.  Even 5 years later, when I think about the things that I used to do so easily on my own — before MS became a part of our lives — it does make me sad.  On the postive side, there have been many lessons that I have learned on this particular journey that I was not even aware of prior to this detour.  It is for these lessons that I am most grateful, and why I started blogging — to remind myself – and others with chronic diseases — of the good that can come from facing this type of challenge. 

Yesterday, I read another encouraging quote from Daisaku Ikeda ( that really speaks to this and shares a way for us to look at the challenges that we face:

Whether we regard difficulties in life as misfortunes or whether we view them as good fortune depends entirely on how much we have forged our inner determination. It all depends on our attitude or inner state of life. With a dauntless spirit, we can lead a cheerful and thoroughly enjoyable life. We can develop a “self” of such fortitude that we can look forward to life’s trials and tribulations with a sense of profound elation and joy: “Come on obstacles! I’ve been expecting you! This is the chance that I’ve been waiting for!”

Here’s to working on my attitude!


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